My Backstory
When I was in third grade, I broke my arm during gym class. We were playing a jumping game, and when I landed my right arm was fully...
The Importance of Community
When I received a phone call from a kid in Oklahoma, who wanted to organize a screening of "The Ataxian", I had no idea how it would turn...
Friedreich’s Ataxia: Thoughts from Inside the Research Lab
Hello! My name is Layne Rodden. I am a 3rd year neuroscience PhD student at the University of Oklahoma Health Sciences Center. I work in...
Move With the World, Not Against It
My name is Erin Pieper, I'm 30 years old, and I was diagnosed with FA in January of 2010. It’s crazy to think it’s been over 8 years...
Tragedy Can Be Motivational
Hi, my name is Shandra Trantham and I am 20 years old. When I was 9, my favorite summer activity, gymnastics camp, turned into a scary...
Getting Out of My Comfort Zone
I was diagnosed with Friedreich’s Ataxia in May of 2016 after a five month period of uncertainty. I went through a period of time where I...